SUPPORTING OUR FAMILIES AND CARERS

Because You Deserve a Break

Caring for someone with early-stage dementia is a profound act of love. But it can also be emotionally and physically draining. You might find yourself juggling appointments, managing medications, and providing constant companionship and all while trying to maintain your own well-being.

It’s natural to feel overwhelmed. You may ask yourself, “Am I doing enough?” or “How can I find time for myself without compromising their care?”

At Tapestry Day Club, the carers of our guests are equally as important to us as providing an engaging and stimulating day to our guests.  We know that for a carer to relax and enjoy some respite, it has to be in the knowledge that their loved one is being supported and cared for with compassion and respect.  

Dementia day care - Tapestry Day Club - chatting together over a coffee
Dementia day club - enjoying the sunshine - Tapestry Day Club

We can help support some of the challenges many carers face:

Feeling anxious about leaving your loved one alone

Worrying about their loneliness or isolation

Struggling to find time for work, errands, or rest

Needing support you can truly trust

Our club days provide invaluable time for our guests’ carers and families to recharge, knowing their loved ones are in safe and compassionate hands.  We believe that supporting the carers of our guests, all of whom are living with dementia, is crucial.  Carers often face challenges such as managing behavioural changes, navigating health systems, and balancing their own needs with their caregiving responsibilities.  Our day, between 4½-5½ hours (depending if transport is provided), can help towards providing some valuable respite.   

Our Wrap Around Support

Each new guest receives a home visit from our trained staff, including a two-hour pre-assessment, risk and needs evaluation and personalised support planning. The main objective of the assessment is to capture our guests’ life stories, family, former occupation, hobbies, interests and dietaries. Nothing medical is noted unless it impacts on the day or any financial details.  Family carers are actively involved throughout the assessment to ensure their concerns are heard and they receive appropriate guidance and reassurance.

Guests are then invited to attend a welcome day in the home of a trained Host to build familiarity and confidence before regular attendance begins. Our small-group, home-based model allows us to tailor each day around guests’ personalities, medical needs, and interests – building trust and comfort from day one.

Dementia day support - Tapestry Day Club -wrap around support

Additional  support

We also recognise that the needs of our guests and their carers and families often extend beyond the hours of our club days.  To ensure a comprehensive and supportive experience, we:

  • Offer Door-to-Door Transportation: When required, we provide transport for our guests. If unavailable, we arrange alternatives such as taxis or volunteer drivers to ensure accessibility.
  • Adapt to Changing Needs: We’re equipped to respond to last-minute changes, including adjusting transportation arrangements or  rescheduling sessions, offering flexibility and reassurance.
  • Provide Tailored Guidance to Families: We offer advice and connect families with dementia advisory services such as Alzheimer’s Society and Dementia UK, other local charities, and helpful organisations to address any specific challenges they may face. Please take a look at our section on Useful Contacts.
  • Assist During Key Transitions: Whether families are transitioning to a care home or seeking end-of-life support, we provide trusted resources (Our Working Partners) and compassionate guidance to help them navigate these critical stages.
Tapestry Day Club flexibility with support
Dementia day support - Tapestry Day Club -safeguarding

Peace of Mind

The safety of our guests and their hosts is paramount and we want to assure all carers that we take it seriously.  We have a detailed Safeguarding Policy and reporting system.

Hosts are carefully selected individuals who welcome guests into their homes.  All hosts are required to undergo an Enhanced DBS check and receive extensive training, including Emergency at Work First Aid, Food Safety Level II,  Safeguarding Adults, Awareness of Mental Health, Dementia, and Learning Disabilities, Moving and Assisting of People and attend the Alzheimer’s Society Dementia Awareness course. 

A host’s home must have a downstairs toilet, easy access, and be thoroughly risk-assessed. Hosts also need a full driving license and a five-door car for transport.

For our guests, we conduct a comprehensive Guest Assessment and Risk Assessment is completed prior to joining the service.

Our Risk assessment covers nine areas: signs of abuse and exploitation; eating and drinking; daytime medication; orientation and wandering; moving and handling; allergies; personal care; mobility; and behavioural changes.

The outcomes of the risk assessment determine the review frequency, which can be monthly to three-monthly or every six months.

Unfortunately we cannot offer the day service to anyone who falls into the high-risk category based on the assessment.

We also carry both full Public and Employer Liability.

Useful Resources

  • Age UK – More Money in Your Pocket – a guide that explains the different benefits that are out there and how to claim what you’re entitled to.
  • Attendance Allowance – helps with extra costs if you have a disability severe enough that you need someone to help look after you. Call the helpline to get a claim pack on 0800 731 0122.
  • Age UK Finance – information and advice on a range of topics related to money and legal issues, from claiming State Pension to setting up a power of attorney.
  • Alzheimers Society Living well with dementia – an excellent publication both online and in hard copy.
  • Carers UK – a charity providing information and support for carers, including information about benefits.  
  • Dementia Carers Count – Online help, information and advice for dementia carers
  • Dementia UK – a wealth of information including downloadable leaflets 
  • Funding Care – Practical advice and support to help you navigate paying for care
  • Herbert Protocol – a form that you can keep on your computer or print it out and fill it in by hand. To be kept somewhere safe where you can easily find it if the person goes missing. You could give a copy to friends, family and neighbours. Keep this information up to date whenever something changes. You only need to give the form to the police if the person goes missing.
  • My Future Care Handbook– an interactive workbook designed to guide you through the complexities of planning for later life
  • NHS – Living well with dementia
  • Power of Attorney – a guide that explains how to appoint an attorney if, for whatever reason, you’re no longer able to make your own decisions or communicate what those decisions are. It takes you through the different types of power of attorney and explains when each may be helpful.
  • Tuvedia – Emergency respite care in West Sussex for a temporary period of time.
  • Safe and Well Visit – a Safe and Well Visit is a free service carried out by West Sussex Fire & Rescue Service. It involves a pre-arranged visit to your home to offer advice on how to make it safer and, where appropriate, fit smoke alarms or other specialist fire detection equipment free of charge.

“Tapestry Day Club normalises something that is not normal. I have a day to feel like I can cope, that everything is normal. My husband has his day, happy and active, and I have mine. Sadly, it doesn’t last long
enough, but for a brief moment, it feels like the old days.”

A carer explains some of the benefits of Tapestry Day Club for both himself and his wife.